Having a Mother Duck who is a mental health registered nurse, family and friends with mental health conditions and a keen interest in specialising with students who have special needs during my studying days at uni (including a steady uni job at a school as a students with special needs assistant) and later, in my career prior to 2012 (and now post 2012, of course), I've always been incredibly intrigued by our complex minds and the mental health of human beings (animals too!) - even when my brain was once relatively 'healthy'. Interestingly, I had my two strokes in both the left hemisphere and the right hemisphere of the brain (left - Stroke #1; right - Stroke #2. Just being fair!), hence the differences in their effects on this Kitty (the location of damage has a direct correlation with what is affected in a stroke survivor's thinking/doing/being).
The website link at top gives an incredibly touching, detailed description of how Jill Bolte Taylor's own stroke (coincidently and conveniently - for her to know to seek help ASAP when she suffered the brain injury - a neuroscientist) happened. Looking back, I wish I was so observant of my mental health's well-being when I had my first stroke, or at least actively wanting to know why I was having regular headaches (that were always cured with Ibuprofen - I have since discovered a highly condemned pain reliever. Please take note for your own sake. My dear docs/Registered Nurse Mother Duck now strongly advise Paracetamol and/or Aspirin use only) and more proactive in finding what the cause of my first stroke was in a more appropriate, effective and swift manner than the occasional outpatient appointments I was having in the months post Stroke #1 in 2012. Despite suffering a stroke, the cause hadn't yet been identified so I was in the midst of having various outpatient appointments in the months I was back in London that involved a range of daunting and/or fascinating tests to understand more about my particular Special K brain. These tests included wearing a heart monitor for a week (pretty cool party trick, showing my mates that I was wearing it when out celebrating the weekend. Scare tactics that would ensure a sudden surge in my heart rate were discussed. Naturally) and then posting back to the hospital (they even supplied the pre-paid envelope. Amazing and supportive work by England's dear NHS!) and/or an MRI test to show the distinct damage (see below for a clear visual of Special K's brain damage). I'm sure an angiogram test (an 'am I peeing myself in front of all the nurses and docs?! No....Wait, am I?! No....Wait, am I?!' examination) - which is where a medical dye goes through your body's blood vessels clearly showcasing any inflamed ones on a special monitor for the wise ole docs to examine - was organised in the coming weeks/months at one of my outpatient appointments that I was in the midst of regularly attending, but I didn't get there in time!
What St George's medical superstars deduced when they finally performed an angiogram test on this Kitty Kat in November 2012 was what they think (<<operative word) caused both my bloke-luring strokes - Vasculitis - a rare disorder I was born with that causes blood vessels and/or arteries to destroy due to inflammation in our/my little nervous system. This disease doesn't just happen in the brain, I was just 'unfortunate' that it picked my well-oiled Kitty-Brain to attack in 2012 and that it wasn't identified during one of my various outpatient appointments in the months leading up to Stroke #2 when we were actively trying to discover the cause of Stroke #1! You are also welcome to Google Vasculitis 'til your heart's content. Reflecting, I knew my 'headache' in July 2012 was incredibly peculiar, but I wasn't at all concerned at the time because I had regular (weekly) headaches and I thought it was a mixture of that and fatigue (let's blame the 2012 London Olympics *and its year-long lead up* for being tired - the city was electric!). As many would also presume in such a situation, I thought I just needed to have a little Kat-nap - ala La La Land - just like Taylor explains in her own recount, so that I'd be ready to party the night away with my lovely English colleagues on our last day of the school year.
That is why I wasn't as concerned as my dear workmates after Stroke #1 (perhaps because I didn't see just how unusual/unwell I looked at the time nor properly analyse the situation - which if done would have been pretty obvious I was suffering from several typical signs of a person experiencing a textbook stroke) and would have gone home to sleep it off if it weren't for my wise colleagues. I have since learned that going to sleep after experiencing a stroke is the one of the worst actions you could take - despite the desperate longing for such, someone who has suffered a stroke must avoid this and seek help/be treated immediately! Please, please, please remember this piece of wise advice (rich coming from me - your special little Dory-Kitty!) and the range of symptoms one may experience when suffering a stroke so that - in the event of a stroke - you and/or someone you know (i.e.: the bleak 1-in-6-people-will-have-a-stroke statistic is like saying every person born in say May and October will have such a brain injury) avoid unnecessary brain damage, that may even result in death due to negligence during the critical small window (we're talking a few short hours) for initial stroke treatment. I am truly fortunate (as are you to still have me!) that my ignorance (and the ignorance of others) didn't cost me my life.
After suffering a stroke, a person loses about two million brain neurons every minute that goes by before seeking help from medical professionals - the mere fact I can score well in speech and language therapy's IQ tests (and no longer require due to such high level results/making them laugh too much when they ought to be working. Boom!), regularly teach/assist students at a supportive school I currently volunteer at and can (and will) perform all the suave dance moves to Michael Jackson's Beat It despite the vast loss of neurons from both my strokes surprises me to no end. However, in saying that and my well-documented short term memory loss aside, I do notice a distinct change in my current abilities to be articulate, for example, where I now struggle to use more sophisticated and/or technical words when I do communicate with people, fail to recall Federer's Grand Slam titles during a very serious trivia 'game' and let's not forget - I thought Queen Elizabeth II was no longer our leader/alive! These aforementioned deficiencies can actually be quite entertaining (bed hopping *not on purpose* at hospital was also a little bit fun/humorous, as is forgetting my bank card's pin so that my 'dates' have to pay for my meals/drinks and not knowing who I'm actually dating *too many to remember, you see!* is a positive when you consider my past taste in men), but for the most part, my brain damage and its daily hurdles are utterly heartbreaking and as I become more aware of just what has happened to me at such a young age and the severity of such, as well as what I have lost in my life as a direct result of the strokes (health, career, friends and living circumstances to name but a few), I become more aware of the shocking ignorance by some people who were once very dear to me.
I wish I thought my strokes were 'so cool' like Taylor did (pictured above, holding a...hmm either a frozen cheeseburger orrrr or or maybe a brain?!) and that it was helping my professional development! Perhaps it is helping me become a better teacher - I'll get back to you.
A wonderful stroke of insight.
One of my initial thoughts, first and foremost, was concern about my class and my ability to teach, which was then followed by worry and angst about travelling around Europe in the coming weeks - after suffering both strokes! Those silly, incredibly minor issues were as big a concern as the strokes were to me at the time! Stroke #1 had 6.5 weeks of rehab (aka UK school summer holidays in 2012) and I was adamant to get back to work (which I successfully did for two months until Stroke #2 hit during a week-long school break in late October 2012). Admittedly, I only had a few days before I was meant to be back at school when I had Stroke #2 and I couldn't even tell you if it was a week day, where and with whom I lived with (eventually found out it was in Battersea with two lovely young English gentlemen), nor who I was just talking to on the phone a minute earlier (huh?! I was on the phone?! No I wasn't! You're scaring me... = a likely Kitty response) - I was Special K! Heartbreakingly, I would cry at the mere mention of my British class and any supportive pieces from them would cause tears of a deep sadness that one only experiences when they - for example - lose an adored family member. I cannot explain the immense depression I felt at losing my independent, satisfying & youthful life in an instant during the intended prime of my existence, but it surely tested my psyche and - perhaps more importantly - the psyches of my loved ones greatly!
Because of my second stroke's vast brain damage, I instantly lost my ability (once regarded as a right) to be my 'normal', positive, witty, healthy 26-year-old self with a sound mind, teaching my year 4 class, being a fiercely independent Kitty, yet always surrounded by many amazing people who light my fire and absolutely thriving by my well-deserved life with them - as it should be. Basically having an exuberant, youthful life that was constantly stimulated by regularly travelling our wonderful world, immersing myself in stimulating friendships with people from all walks of life, as well as acquiring new positive (even negative, that then turn into positive!) experiences that help shape the person I am for the better.
This is one example of my class' well-wishes that kept my sanity and optimism whilst my life hung by a thread post Stroke 2 at St George's Hospital
November 2012
November 2012
It is incredibly intriguing to hear that Dr Taylor (please note: not to be confused with the lovely Mr Taylor below) was thinking about her mental well-being as she experienced her stroke. When I had both strokes, I initially wasn't at all concerned about my mental well-being (I wish I was)! It was kind of like when you are rather under the influence - but you feel sober - yet everyone around you knows you are incredibly inebriated because of what you are doing and how you are acting and then the next day, in hindsight, you then realise you had a little too much to drink. This is why I am truly fortunate and grateful that I had such educated and aware people around me in both instances and why I am forever spreading the word about the warning signs of strokes.Time makes all the difference once a stroke has occurred where medical treatment needs to be administered swiftly (don't I know it?!) and because there are such a vast range symptoms, one needs to be aware of all.
There are a range of stroke test guides, including this easy-to-remember FAST Test above. Additionally, if someone seems disorientated, asks questions they normally would know the answer for (i.e.: Whose maroon pants am I wearing? Why am I at your house? Why aren't I at work right now? - real questions asked whilst suffering from the second stroke!), have difficulty poking out their tongue in a straight manner (this one is a newly acknowledged sign not influenced by Miley or Kiss) and of course, my Stroke 1 symptom of sudden onset of severe headache, they could be showing signs of TIA or stroke. Some people may even have trouble walking and/or be physically sick - this inability to simply balance and the symptoms listed are why people can assume a person experiencing a stroke is inebriated. Never assume...It makes an ass out of u...(you know where I'm going with that).
Learn stroke symptoms from the professionals -
You may not see it coming from this happy shot, but this photo was taken the evening Stroke #1 hit me at just 26 years of age with some of my lovely English colleagues - we were about to go celebrate all our school year's (extra) hard work! Twickenham U.K. July2012 |
Just a few days post Stroke #1 in July 2012 - at London's Charing Cross Hospital rooftop - not a care in the world...Except you can see that I have a heart monitor on, a little laxative cocktail (delich! - to counteract the effects of all the drugs in my system) in hand, a cotton ball covering the puncture wound from all the daily invasive blood samples stolen from me, a generic hospital name tag on my wrist (with my last name spelt wrong and the incorrect d.o.b *was my forgetful brain to blame for such?!*, mind you - does that mean I didn't really have a stroke?!), smiling - even offering a thumbs up I'm in that positive a spirit - & all the while on a hospital's (not a bar like it may seem) rooftop during strict visiting hours at the start of my 6.5 week 2012 Summer Holidays. |